Watch this short film (15 minutes) and you will understand a little bit about our pain. As Eric Stevens says, "It is almost more frustrating knowing that there is something out there that will help us, that we can not have....than it is to actually have ALS."
I know exactly how he feels, as I am living it EVERY SINGLE DAY: Which is why I FIGHT.
These bills may take ALS from being 100% Fatal -to becoming Treatable.
Time is not on my side, but I hope you are by my side when the bills are introduced to the 117th Congress for 2021.