You've been asking how you can help? Here is your chance:

Calling all Soldiers, Warriors, Gladiators and even behind the scenes spectators:  

https://iamals.org/action/fda-congressional-hearing/ 

(Link inserted in case you want to get right to the point)

We (with ALS) NEED a Congressional Hearing. We must FLOOD Congressional offices with a our request for a hearing. We need help from everyone & anyone you know... and even the ones you don't know.   There IS power in numbers.   Every single person counts! You will NOT be put into some SPAM list, but you WILL count as a person who took action to help save my life.  Please share the link on your own Facebook page, through e-mail, text, carrier pigeon....whatever it takes. Ask everyone to take 60 seconds out of their lives to help save our lives.

Research is awesome, but it's time for us to get drugs and treatments in bodies.  Let's do this!!       

https://iamals.org/action/fda-congressional-hearing/ 

 
(Oh...and that picture of me with the sword?  I was trying on outfits for Disneyland, of course.  June 2019)